Cerebral Palsy

[livingwith]

My daughter was born at 29 weeks gestation weighng only 3lbs,1.4 oz ,when we were sent home from the nicu we thought lily would just grow and be a normal baby but we were wrong ,she started having alot of reflux issues and breathing problems,and was not hitting her milestones on time,I kept telling her dr,s that someting was not right,she kept her hands fisted alot of the time,she had leg tremoers and turned both feet out ward and kept them pointed downward,
They kept telling me she was a preemi...Read the full article

[rajkag]

Hi there,
Thank you so much for sharing your story. My daughter has not been diagnosed with CP yet, but I believe that she will be soon (we have an appointment with a neurologist next month). We have known that she was at risk since she was born along with her brother and sister (triplets!) at 30 weeks (at 3 lbs) and PVL was discovered when she was still in the NICU, and she is quite delayed in reaching developmental milestones: at 14 months (12 adjusted) she can sit, but only with help on positioning and something in front of her to hold onto, and she is not crawling yet.

She is receiving PT and OT services, so I suppose we're doing everything we can to help her, but I'm still very apprehensive about what the future will hold for her. Of course I'm hoping for the best, but sometimes all the reading I do on the web makes me fear for the worst. So reading stories like yours is encouraging. Can you share anything more about how the progress she's made and what you attribute it to?

Thank you in advance