[livingwith]

i wasn’t told i had spastic hemi cp until 16 years old.my parents thought it was no big deal, other than a limp and minor hands tremor. i think i’ve a mixture now but it’s not been diagnosed.
growing up, i avoided competitive sports but liked swimming, walking/hiking, reading, writing. shortly therafter, then i moved from the south to a northern climate to go to school and started to notice more spasticity and fatigue in the cold.
from being born premature, i also had some is...Read the full article

[cppatient28]

Hi,
Your story is sounds very familiar to me. I wasn't diagnosed with spastic diplegia until I was 9 years old. I am able to walk but I have a limp and problems with balance. I had a career for about 7 years but noticed that my body was so worn out from doing easy tasks. Due to the pain and fatigue from my CP, and from my Crohn's Disease (inherited), I had to stop working 2 years ago. I'm fighting for social security right now. I recently moved from VA to MI and noticed a difference in my spasticity, which I thought was just in my head, but after reading your story I realize that the temperature just might be related! I was wondering if it took you a long time to get approved for your social security and if you have any advice? People say that CP is not a degenerative disease. At 28 years old I feel like my CP is a lot worse than when I was a kid. I know this has to do with the wear and tear on my body but I wish others could understand.
Take care and good luck!