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Diagnosed ALS but no meds

Post a new topicby vinci on Sat Jan 26, 2008 8:24 pm


I was diagnosed with ALS 3 months ago, however, not 1 of the 3 doctors, 1 is a specialist has prescribed any medication to me! Is this normal! If not, what do I do!

vinci

vinci
 
Posts: 3 | Joined: Sat Jan 26, 2008 8:14 pm

Re: Diagnosed ALS but no meds

Post a new topicby clarence on Thu Jan 31, 2008 6:27 am

hi... i read what you have wrote but you know vinc my mother died from the ALS disease, yes its true their is no med yet for this disease but what we do is we brought her into the iridology to seek for other help to you know vince its only yourself could help you its the prayer and faith to God....clarence

clarence
 
Posts: 1 | Joined: Thu Jan 31, 2008 6:12 am

Re: Diagnosed ALS but no meds

Post a new topicby happy on Mon Feb 11, 2008 11:03 pm


Hi,
I am new to this forum. I have been having symptoms, I am waiting to see the neruo surgeon.
Anyway I read that there have been developments in the way of lithium for keeping ALS from progressing too quickly. Maybe you can talk to your Dr. about it. (research it yourself of course)
I wish you the best. Keep your mind positive and live your life to the fullest.
God bless!

Robin

happy
 
Posts: 2 | Joined: Mon Feb 11, 2008 10:57 pm

Re: Diagnosed ALS but no meds

Post a new topicby ladybug2 on Wed May 14, 2008 12:32 pm

hi,i am 43 and was diagnosed with bulbar onset als last month,and i am going to get a second opinion at the end of the month,and i plan on making sure the doctor puts me on something,i have read about riluteck,lithium and several other things that help keep it from progressing so fast.sometimes you have to tell a dr what you would like if they dont agree,then find another dr,because if you are diagnosed with als then they should not have a problem prescribing you with some meds that possibly might help .i have had a long 3 years of trying to get to a diagnosis,this is not the one i wanted but i got answers anyways,and alot of dr's thought i was just crazy ,but now i can look at them in the eye and they are the ones that should feel bad that they did not find the answer.so you tell them what you want,if they don't want to help then tell them you will find another dr that is more experienced to help you...good luck,,wanda

ladybug2
 
Posts: 4 | Joined: Wed May 14, 2008 12:18 pm

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